English summary: Special health services are needed for young adults using wheelchairs

Objective

Disabled people are in general at risk of social exclusion. This study focused on young adults using wheelchairs and aimed to ascertain the role of public services in supporting their independence.

Methods

All clients and former pupils using wheelchairs born between 1988-1991 from four health care districts and Ruskeasuo Special School received an invitation letter. Of the 80 subjects invited, 60 were willing to participate. One and the same nurse belonging to our research team visited the homes of all study subjects and interviewed both them and their parents with the help of two questionnaires and augmentative and alternative communication.

Results

All study subjects had chronic health problems, 75% were on regular drug treatment, and 78% had an associated impairment. Half of the study subjects suffered weekly or daily from pain, which was most often unbearable or intense. Only one third of the subjects were treated by a specialist they trusted, and only half of them knew a nurse or a counselor who was easily available and ready to help when needed.

Conclusion

Young adults using wheelchairs often have multiple disabilities and longstanding health problems such as intense pain. We found crucial shortages in the public medical service systems which may increase the risk of social exclusion. Our findings are in line with several international reports. There is a huge need for special clinics for disabled people serving all age groups.